I spent seven months of my pregnancy aware that I was carrying a little girl with Down syndrome.
Seven months is a long time between diagnosis and delivery, and fortunately for me, a new website launched shortly after receiving "the call." Down Syndrome Pregnancy provides amazing, up-to-date information and support for parents waiting, waiting, waiting to meet their little one.
Stephanie Meredith, an amazing voice in the Down syndrome community, worked with a team to create the booklet "Understanding a Down Syndrome Diagnosis." The booklet is reviewed by medical professionals and is an unbiased and real look at Down syndrome.
I'll be sharing a copy with my doctors next time I'm there. In fact, I might make a special trip just to drop off the booklet, because I'm sure they'd distribute the information - they were wonderful when we received our diagnosis.
Thank you Stephanie, Nancy, Kelle, Missy, Heather, Amy, Sarah, and Lisa, and everyone else involved with the DSP/Lettercase projects. I reaped the benefits of your hard work, but I can't even imagine the help all of these new resources will provide for new parents.
Friday, November 16, 2012
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I am so thankful God gave Ellie to you.
ReplyDeleteCoincidentally I am going in for my annual this week. I happen to have a copy of this booklet as well that I can share with the office. I am a big believer in the more you know the more you know!
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